The AG Bell Association for the Deaf and Hard of Hearing works to ensure individuals who are deaf and  hard of hearing can hear and speak by providing support, information, resources for families and professionals.

The Aicardi Syndrome Foundation is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome.

The American Association of the Deaf-blind is a national nonprofit that strives to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community.

The American Council of the Blind strives to increase the independence, security, equality of opportunity, and quality of life for all blind and visually impaired people.

The American Foundation for the Blind cultivates in-depth knowledge that improves understanding of issues affecting children and adults who are blind or visually impaired, to facilitate meaningful change that fosters equality and inclusion through research, promoting knowledge and understanding, and shaping policy and practices.

APH offers information on blindness, educational resources books, and accessibility solutions. The APH ConnectCenter offers free advice and resources to assist children, parents, adults, and job seekers who are blind and visually impaired, and associated professionals.

The American Society for Deaf Children is committed to empowering diverse families with deaf (inclusive of various hearing levels) children and youth by embracing full access to language-rich environments through mentoring, advocacy, resources, and collaborative networks.

The American Speech-Language-Hearing Association is the national professional, scientists, and credential association for audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology, and speech-language pathology support personnel, and students.

The Assistive Technology Industry Association is an organization of manufacturers and providers of assistive technology for products, equipment, and system that enhance learning, working, and daily living for persons with disabilities.

The Bardet Biedl Syndrome Foundation and Family Association is dedicated to improving the lives of individuals and families affected by BBS. The mission of BBS is to provide a community of support for individuals and families; information about BBS; and promote science and research to improve the lives of individuals with Bardet Biedl Syndrome.

The Batten Disease Research and Support Association is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action.

Beyond Batten Disease Foundation was established to eradicate juvenile Batten disease by raising awareness and funds to accelerate research for a treatment or cure.

The CdLS Foundation is a national non-profit organization that serves individuals with Cornelia de Lange Syndrome and their families, distributes publications to families and professionals caring for individuals with CdLS, and hosts meetings and conferences for researchers and families.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE Syndrome through outreach, education, and research.

Children’s Craniofacial Association, a national non-profit, addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

The Council for Exceptional Children advocates on behalf of children with exceptionalities by examining policy issues, developing appropriate responses to those issues and influencing local, state, provincial and federal legislation.

The Dandy Walker Alliance connects families throughout outreach and support, conducts research, hosts events and programs and publishes educational materials.

The Deaf-Blind Citizens in Action strives to empower people who are deafblind through education, technology, and legislation and to ensure that deafblind persons have a strong political voice so that they may lead productive lives with equal opportunities.

The Disabled Children’s Relief Fund is a national, non-profit organization dedicated to acting as an advocate for the rights and needs of children with disabilities.

The Epilepsy Foundation’s mission is to overcome the challenges of living with epilepsy, and to accelerate therapies to stop seizures, find cures, and save lives.  Affiliates of the Epilepsy Foundation are located in each state.

The Fighting Blindness Foundation focuses on research of prevention, treatments, and cures for people affected by degenerative retinal diseases.

The Moebius Syndrome Foundation’s mission is to provide information and support to individual with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

The National Association for the Education of Young Children  is a professional membership organization that works to promote high-quality early learning for all young children, birth through age 8, by connecting early childhood practice, policy, and research.

National Association for the Deaf is a consumer advocacy organization for deaf and hard-of-hearing individuals.

The mission of the National CMV Foundation is to educate others about specific prevention measures to protect against the risk of CMV infection and the identification of at-risk children through newborn screening.

The National Cued Speech Association supports effective communication, language development (international languages) and literacy in families with deaf, hard of hearing or learning-disabled infants, children, and youth through the use of Cued Speech.

The National Family Association for Deaf-Blind a non-profit organization serving families of individuals who are deaf-blind, strives to empower the voices of families of individuals who are deaf-blind, and to advocate for their unique needs.

The National Federation of the Blind is continuously working towards securing full integration, equality, independence, acceptance, and respect for all blind Americans.

The Pathways Awareness Foundation, a non-profit organization, provides free tools to maximize all children’s motor, sensory, and communication development.

The Sturge-Weber Foundation (The SWF) global mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research and friendly support.

The goal of the Turner Syndrome Society is to provide the most useful and accessible information to individuals and families for Turner syndrome related needs.

The United Mitochondrial Disease Foundation promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.

The Usher Syndrome Coalition raises awareness and accelerate research for the most common cause of deafness and blindness. The Coalition provides information and support to individuals and families.

The Vasculitis Foundation supports, inspires, and empowers individual with vasculitis and their families through a wide variety of education, research, clinical and awareness initiatives.